I'm so grateful for everyone who keeps me in the news loop regarding Lyme disease, but I will admit, "I'm so tired of seeing that damn tick that caused my family to fall flat on our backs." Hahahaha! Could they pick a different picture to start their articles? Seriously, it makes me want to vomit, and not read the article. I'm sure most people don't mind it, but for those suffering greatly, it's like looking at the devil himself. It's like Adam and Eve seeing a snake after the fall. Thanks for letting me be honest.
Friends and family have sent several articles about a Lyme disease vaccine, first for dogs, and now developing for humans. There have also been better diagnostics tests that are making there way to the surface. It reminds me of when I was searching high and low for the answer that may save my life. Once I was able to get a diagnosis, then I thought I was free. Not so much. I had just rounded the first finish line, only to find myself at the start line again with no cheers of freedom, as I was anything but free from this terrible disease. Now if I had acute Lyme, then sure, the finish is the finish. But chronic? You are doomed in the medical system with chronic. So you have to go outside of the medical system, well at least the main stream medical. You have to spend your life finances away (as if you hadn't already spent it all on the search), just to be treated. And being treated doesn't cure you.... And I can't tell you how many times you just want to give up, give your life up. When you are a Christian it's no big deal, but you have a husband and two kids. But it's in this point that I was able to release them to God trusting them to His care. And then you get up and fight again.
Let's recap to get to my point:
Acute Lyme treatment
Lyme Vaccine
Diagnostics test
So, my question is????
Why isn't anyone working on the chronic side, the cure? Why do we still have to pay tons of money because our doctors can't take insurance? Otherwise they will be penalized for treating us. But they are the only ones who are able to get us to a place where we can function and hopefully NOT DIE. Why is the government continuing to lie about the chronic and not backing up our doctors?
I'll tell you why. They have shunned us as already doomed. In their minds, if they find a vaccine, then the next generation won't force them to come out and tell the truth of their dirty lies.
From the VCU news article on the story:
"Richard T. Marconi, Ph.D., professor in the School of Medicine’s Department of Microbiology and Immunology, will be awarded a $510,000 one-year grant from the National Institute of Allergy and Infectious Diseases, part of the National Institutes of Health, to advance the development of a human Lyme disease vaccine. In addition to NIH support, this effort is supported by the Stephen & Alexandra Cohen Foundation."
Are you kidding me?
$510,000 to find a vaccine? Does he need ALL of that money? Can't they find a cure with some of it?
As I write: My daughter speaks up, "Mom I hear ringing in my ear." Welcome to my world. All day long symptoms. All day long, scheduling pills... mine are 30+ per day. I discovered at my pulmonologist that it only takes 6 minutes for my organs to grow weak, inflamed, and pooch out of my stomach area (it's the only way for their relief I guess). So next time someone looks at me with judgement because I get out of my mom van with a 13.1 sticker on the back, after putting up my handicapped sticker, and speed walks into the store... well I'll do nothing as usual. I'll look up and thank God that I can walk. I'll look up and thank God that I have 6 minutes until I start to get weak. I do what I have to do. I have a family to take car of. My days are measured, and ordered around what I can and can't do. Low stress. I've been waiting 3 years for disability, and still can't get in front of a judge. My pride was in the way before I actually filed, because well again people judge. Saturday we all went to Kohl's, Lilli and I were shopping for her. After looking through for about 5 minutes, Lilli says, "Mom I love you, and I love that you know how to shop!" It was so cute. But fast forward, oh maybe about 2 minutes... and she's hanging on the cart telling me her legs hurt, belly hurts and she just got really tired. Well I was luckily able to find the adjustment for the toddler seat at the front. Yay! Relief! So she sat in that with her legs hanging over the front. YOU WOULDN'T BELIEVE HOW MANY LOOKS I GOT! I wanted to say something to this lady staring us up and down and whispering to her husband. I didn't of course, but more and more continued to look and judge. Lilli even noticed. You just have to shake your head and say, "If they only knew. People will always be people." And keep strolling, because I will NOT make my baby walk on her hurting legs, just so we aren't judged by the world. Keep staring and keep judging, unless you want to think a little deeper than what you see on the surface. You see, we all look 100% healthy, so that gets you more looks than ever. Again, look up and thank God that He's walking with you every step of the way saying, "Sarah, it's okay because I love you. Lean on me and you will feel worthy. Identify with my Son and you will be whole. Don't pay attention to them; look up and rest in me, and I'll walk you through this." I always say, God must be preparing us for something big!
I got off on a tangent... haha!
My point is... If I see an article about someone searching for a cure or the government pressing in on the insurance companies allowing doctors to treat chronic patients aggressively?...
Well, THEN I will be jumping for joy!
Don't get me wrong here: I'm super happy for all those who don't have Lyme :) .
1 Thessalonians 5:16-22
Rejoice always, pray continually, give thanks in all circumstances; for this is God’s will for you in Christ Jesus.
Do not quench the Spirit. Do not treat prophecies with contempt but test them all; hold on to what is good, reject every kind of evil.
REJECT THE TICK! LOLOLOL
Friends and family have sent several articles about a Lyme disease vaccine, first for dogs, and now developing for humans. There have also been better diagnostics tests that are making there way to the surface. It reminds me of when I was searching high and low for the answer that may save my life. Once I was able to get a diagnosis, then I thought I was free. Not so much. I had just rounded the first finish line, only to find myself at the start line again with no cheers of freedom, as I was anything but free from this terrible disease. Now if I had acute Lyme, then sure, the finish is the finish. But chronic? You are doomed in the medical system with chronic. So you have to go outside of the medical system, well at least the main stream medical. You have to spend your life finances away (as if you hadn't already spent it all on the search), just to be treated. And being treated doesn't cure you.... And I can't tell you how many times you just want to give up, give your life up. When you are a Christian it's no big deal, but you have a husband and two kids. But it's in this point that I was able to release them to God trusting them to His care. And then you get up and fight again.
Let's recap to get to my point:
Acute Lyme treatment
Lyme Vaccine
Diagnostics test
So, my question is????
Why isn't anyone working on the chronic side, the cure? Why do we still have to pay tons of money because our doctors can't take insurance? Otherwise they will be penalized for treating us. But they are the only ones who are able to get us to a place where we can function and hopefully NOT DIE. Why is the government continuing to lie about the chronic and not backing up our doctors?
I'll tell you why. They have shunned us as already doomed. In their minds, if they find a vaccine, then the next generation won't force them to come out and tell the truth of their dirty lies.
From the VCU news article on the story:
"Richard T. Marconi, Ph.D., professor in the School of Medicine’s Department of Microbiology and Immunology, will be awarded a $510,000 one-year grant from the National Institute of Allergy and Infectious Diseases, part of the National Institutes of Health, to advance the development of a human Lyme disease vaccine. In addition to NIH support, this effort is supported by the Stephen & Alexandra Cohen Foundation."
Are you kidding me?
$510,000 to find a vaccine? Does he need ALL of that money? Can't they find a cure with some of it?
As I write: My daughter speaks up, "Mom I hear ringing in my ear." Welcome to my world. All day long symptoms. All day long, scheduling pills... mine are 30+ per day. I discovered at my pulmonologist that it only takes 6 minutes for my organs to grow weak, inflamed, and pooch out of my stomach area (it's the only way for their relief I guess). So next time someone looks at me with judgement because I get out of my mom van with a 13.1 sticker on the back, after putting up my handicapped sticker, and speed walks into the store... well I'll do nothing as usual. I'll look up and thank God that I can walk. I'll look up and thank God that I have 6 minutes until I start to get weak. I do what I have to do. I have a family to take car of. My days are measured, and ordered around what I can and can't do. Low stress. I've been waiting 3 years for disability, and still can't get in front of a judge. My pride was in the way before I actually filed, because well again people judge. Saturday we all went to Kohl's, Lilli and I were shopping for her. After looking through for about 5 minutes, Lilli says, "Mom I love you, and I love that you know how to shop!" It was so cute. But fast forward, oh maybe about 2 minutes... and she's hanging on the cart telling me her legs hurt, belly hurts and she just got really tired. Well I was luckily able to find the adjustment for the toddler seat at the front. Yay! Relief! So she sat in that with her legs hanging over the front. YOU WOULDN'T BELIEVE HOW MANY LOOKS I GOT! I wanted to say something to this lady staring us up and down and whispering to her husband. I didn't of course, but more and more continued to look and judge. Lilli even noticed. You just have to shake your head and say, "If they only knew. People will always be people." And keep strolling, because I will NOT make my baby walk on her hurting legs, just so we aren't judged by the world. Keep staring and keep judging, unless you want to think a little deeper than what you see on the surface. You see, we all look 100% healthy, so that gets you more looks than ever. Again, look up and thank God that He's walking with you every step of the way saying, "Sarah, it's okay because I love you. Lean on me and you will feel worthy. Identify with my Son and you will be whole. Don't pay attention to them; look up and rest in me, and I'll walk you through this." I always say, God must be preparing us for something big!
I got off on a tangent... haha!
My point is... If I see an article about someone searching for a cure or the government pressing in on the insurance companies allowing doctors to treat chronic patients aggressively?...
Well, THEN I will be jumping for joy!
Don't get me wrong here: I'm super happy for all those who don't have Lyme :) .
1 Thessalonians 5:16-22
Rejoice always, pray continually, give thanks in all circumstances; for this is God’s will for you in Christ Jesus.
Do not quench the Spirit. Do not treat prophecies with contempt but test them all; hold on to what is good, reject every kind of evil.
REJECT THE TICK! LOLOLOL
